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Author Topic: Second opinions...  (Read 1343 times)

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GoPony

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Second opinions...
« on: September 02, 2018, 08:01:19 PM »
Hi All! Iím a 28 year old female looking for some guidance. After 2 years of pain, failed PT & 3 hip specialists, I finally found out I have hip dysplasia & itís caused arthritis, bone cysts & joint cysts. After hearing so many horror stories about arthroscopic surgery for dysplasia patients, I had my heart set on resurfacing. Unfortunately, when I went to see Dr Pritchett, he told me I wasnít a candidate due to my shallow sockets. He showed me xrays from another patient with dysplasia where the implant was sticking out of the acetabulam and causing issues. I was pretty crushed & my next step is looking into a PAO, which is a brutal surgery. Iím extremely active- Iím in law enforcement and one of the defensive tactics instructors, avid horseback riders, used to be a big backpacker that was just getting into mountaineering and Iím the main breadwinner in my family. I canít really afford to take 6-12 months off from work to recover from a PAO. Do you guys think thereís any point in looking for second opinions when Dr Pritchett is so experienced/well respected? Any other ideas I can look into? Iím starting to go into panic mode about how Iím going to deal with this- Iíve given up all my sports except riding (which seems to help my hips) and gentle swimming. I carry 20+ lbs of gear on my 5í2 frame and my hips are killing me after every 12 hour shift.

blinky

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Re: Second opinions...
« Reply #1 on: September 02, 2018, 10:54:16 PM »
Get the opinion.

The doctors agree about many things, but each has a different set of experiences and level of comfort with risk.  They do not all use the same device or have the same post op rehab recommendations either. See if another doctor would be willing to take on your case.

If not, pick his brain for any other alternatives to a PAO or the names of good PAO surgeons.

Best of luck to you.

Pat Walter

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Re: Second opinions...
« Reply #2 on: September 03, 2018, 12:09:35 AM »
It is always good to get 2 or 3 opinions.  I have seen 3 top doctors not agree on whether a person should/should not have a hip resurfacing.  So f you really want to know, ask several other doctors. Even if you get a THR, you will remain active.  There are people with THRs doing the same things as those with a hip resurfacing.  Depends on what type of THR you get. 


Listen to the top doctors and see what they suggest.  Make sure you tell them what you do and that you want to stay active.



Good luck.


pat
Webmaster/Owner of Surface Hippy
3/15/06 LBHR De Smet

bluedevilsadvocate

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Re: Second opinions...
« Reply #3 on: September 03, 2018, 11:49:30 PM »
There are several surgeons who will do consults by e-mail. Check the list of surgeons --- preferably those with 1,000+ resurfacings. Unfortunately, there are not many who will do resurfacings in women. I believe Dr. Gross still accepts female patients, and he will do consults via e-mail. You might send your information and x-rays to him. I see that you are in the Northwest, and Dr. Gross is in South Carolina, so that could be a logistical problem for you if he is willing to accept you as a patient.
LBHR 10-20-2010
Dr. Brooks - Cleveland Clinic
Age 62 at time of surgery

jimbone

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Re: Second opinions...
« Reply #4 on: September 04, 2018, 09:15:55 PM »
GoPony-
That's a hard diagnosis to have to deal with.  I had to look up POA, and it seems pretty daunting.  Second or even third opinions from specialists of the highest caliber will either offer you an alternative that will come with a different set of risks you will need to evaluate or they will confirm your original diagnosis and by doing do might give you some resolution and peace of mind that it is the only solution available to you.  I don't know whether the POA is a procedure Dr. Pritchett performs but as one of his hip resurfacing patients I can assure you, you will be in the hands of a truly gifted, skilled and caring practitioner.  Best wishes and I hope it works out well for you.

catfriend

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Re: Second opinions...
« Reply #5 on: September 04, 2018, 09:59:30 PM »
Definitely a bummer diagnosis. PAO surgery is brutal. But.... if it is successful you potentially have an very good long term prognosis. You won't develop the disabling arthritis, you'll retain your  natural hips, and, after recovery, have the ability to be athletic again. From what I understand you should be able to return to work by three months post surgery, just not be fully athletic. For your position you may need to find a "light duty" option until you're able to be fully athletic.

I had resurfacing with Dr. Pritchett, and had an excellent experience and outcome, so I expect he gave you quality advice. That said, consult with Dr. Gross, etc. Also consult with whomever he recommended for PAO surgery. You're only 28. You don't want to live like this. You need to do something. You just need to consider what is the best course of action for you.

vonhouser

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Re: Second opinions...
« Reply #6 on: September 10, 2018, 02:42:53 PM »
Send your X-rays to Dr. DeSmet. He handles a lot of tough cases that others won't take, and even if you can't afford to go to Belgium for the surgery, it would be good information in terms of what he thinks.

I had two scopes, and hip dysplasia, and my hip got worse after every one. Resurfacing fixed me right up. I would think Dr. Gross would also be another good one to try.
49 yo Female
Wright Conserve+ with Koen de Smet
Scheduled December 7th, 2016

karlos.bell

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Re: Second opinions...
« Reply #7 on: September 12, 2018, 08:51:40 AM »
Hi GoPony.
Sounds a cool nick name.
Mine was the opposite to yours. Too deep a socket!!!!!!!
De Smet does do difficult jobs unfortunately not in the USA.
I had no other offer in the world so I put it in his hands as I had 3 hip operations FAI and it made me worse.
So get his opinion if you wish to and see what may happen.
1hr 45 mins he had me sorted "amazing" and all the hassles I went through in life are pretty much gone after 3 .5 years.
He commented I was 1 of the hardest patients he ever had due also I had so much surgery that never helped.
Life throws some curved balls at you so good luck. Dysplasia has been around for a long time and it has successful results with the right hip resurfacing surgeon.

All the best Cheers K


2019-2020 THR Left & Right COC Revision Zim Continuum cup with Biolox Delta Cer Liner, Biolox Delta Cer Head 40mm 12/14 Taper, CPT Stem Cem.
2019-2020 removal of Hip Resurfacing due to Metal Toxicity Cobalt - Chromium.
2015 MOM Conserve plus
2011-2013 FAI hip surgery failure
2007-Injury wakeboarding

rag33

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Re: Second opinions...
« Reply #8 on: September 25, 2018, 09:39:50 AM »
I second Dr. De Smet. He did a consult by email. He replied really quickly and clearly. If you need to have a cost idea, I can give that to you.
Right Conserve+, November 21, 2018, Dr. De Smet

einreb

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Re: Second opinions...
« Reply #9 on: September 25, 2018, 03:43:51 PM »
I had a really messed up socket as a result of leggs calves perthes.  Dr Gross used a special acetabular cup that was designed for odd cases like mine.

I'm not suggesting that the same cup and solution applies to you, but going to a surgeon that has dealt with a lot off difficult cases and has device options is a good approach.
40yo at the time of my 2/16/2011 left hip uncemented Biomet resurface with Tri Spike Acetabular cup by Gross

Slinkycarrot

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Re: Second opinions...
« Reply #10 on: October 14, 2018, 05:00:31 PM »
Hi go pony

So we are in a v similar boat.

I was 34 when I had an accident which shredded my ligament and labrum in both hips.  I then found out I had hip dysplasia.  I had three failed scopes on both sides and ended up with bilateral hip resurfacing with dr de smet. My dysplasia was anterior rather than on the sides.  Since the surgery I am having problems with one of my hip flexors catching on the joint - we dont know if its the cup overhanging (dr de smet says not) or scar tissue.  Im meant to be having a psoas release this thursday.  Apparently its not that big of a deal.

Given you already have damage then i wouldn't think a PAO is a good option. That is what I was told.

Try Dr De Smet.

PM me if you have any questions. its daunting being young and in this position.






 

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