Iliopectineal Bursitis?

[Windie1]

Two and a half years after having my hip resurfaced, of being in constant groin pain, of still walking with a cane, and of my doctor throwing his hands up in frustration, I think I've narrowed my symptoms down to Iliopectineal bursitis.  Does anyone have experience with this type of bursitis?  How did you treat it and stop the pain? 

Windie

[sfinrecovery]

Thanks, Windie1. 

I have narrowed down my groin pain to a possible IPB as well, along with a couple of other glute and piriformis pain symptoms.  I am trying to release the stress with Feldrenkreis, acupuncture and gentle stretching. This is of course 9 months after surgery.  I am not taking any pain medication unless I cannot sleep at night, but I noticed that standing up often, driving short distances and staying off my feet after a half hour have helped.  I also sleep with a pillow between my legs on the operated side and it is far more comfortable than the left (good) side.

Keep me posted if you hear about any other suggestions.  Juan

[stano]

Windie1,
How are you doing ? Are you going to see Dr Gross ? shot or exercise program, or both?  It was the best Dr, patient meeting I have ever had, and I hate to say I have been involved in quite a few. best of luck, take care.

stano

[Windie1]

Hi Stano,

Nearly a month after talking to Dr. Gross and doing the exercise, stretching, and massage that he suggested I do, the pain is still just as bad if not worse.  I'll be calling him next week to set up the psoas injection so we can keep going forward.  He'll write a request through my family doctor (my hip doctor doesn't seem to want to help)  >:(  I so much appreciate you sharing your experience - it gives me hope when nothing else does - Thank you!  How are you doing anyway?  Have you seen any improvement since you got home from seeing Dr. Gross?  Take Care.

Windie

[stano]

Windie,

Good to here from you, make sure the person giving you the shot is on track, I went to a Pain specialist that didn't get the program.  That is why I went to Dr Gross .  I am sure you can find a doctor with the knowledge to give a shot where Dr Gross said to put it. I am still on a stretching and exercise program but nothing positive yet, keep me posted on how you are doing. As for my old Ortho I have no further contact.  take care

stano

[Windie1]

Hi Stano.

Can you spell F-R-U-S-T-R-A-T-E-D?  >:( That's me!  It turns out that no doctor here in Austin apparently does the ultrasound guided injection Dr. Gross wants me to get.  I found out that University Hospital in San Antonio does the procedure but they won't take out-of-state referrals or referrals from doctors not affiliated with their hospital (e.g., my local doctor).  I guess I might have to bite the bullet and fly to South Carolina just to get the injection...  Unless Dr. Gross' nurse can come up with something; I asked her for help.  I'm crossing my fingers.  How about you, are you seeing any changes yet?  Take care.

Windie

[stano]

Windie,

I do know the word; most Doctors have a connection to sombody in most hospitals, I hope Dr Gross can find the right person to get you in. I have seen 0 changes, my next move is to go to the Steadman clinic in Vail,CO. Dr Karli has been working on the Platelet Rich Plasma (PRP) for a few years with some positive results, not much else left for me to do. Take care,

stano

[Windie1]

Wow - I'm so sorry, that sounds really serious!  Did your bone never accept the implant?  As much as I complain about my own situation, I at least feel there's a fairly simple fix if I can just get everything done.  My issues now seem pretty insignificant :-[.  When will you be going to Colorado?  Wish you the best Stano, keep in touch.

[pamela1130]

Hi:  I had those ultra sound injections, but they did not help and two years after surgery, I too, am still in pain.  I am very frustrated and don't know what is the next step.  I have had xrays, mri, cat scan, metal ions checked and I am still in paid in the front of my leg at the top of the crease.  So very frustrating like you say.  I haven't even been back to the doctor in six months because he too, "threw his hands in the air."  I am curious to see what the next step would be.

Pam

[Windie1]

Hi Pam.

Dr Gross feels that my groin pain is probably due to the psoas rubbing on the edge of the cup portion of the implant (i have suggested exactly that scenario to my doctor, at least six times, over the last 2.5 years).  Dr. Gross says there could be bone growth around the edge, the edge could be protruding, etc. causing the interference.  The injection is just being used as a diagnostic tool - if it makes the pain go away, however briefly, then we're on the right track.  The reason he wants it done by ultrasound instead of fluoroscope (x-ray), is because the radiologist can see precisely where the psoas and the cup intersect; you can't see it with the fluoroscope.  If in fact the pain does go away, then I go to So. Carolina so Dr. Gross can look inside the hip and, hopefully, fix the problem.  Possible fixes could be shaving off some bone, repositioning the implant, lengthening the tendon (tenotomy), and worst case, replacing the implant...  Anyway, at least we now have a plan.  Good luck.

Windie

[Windie1]

Hey Stano,

Check this out! Are you taking any statins like Simvastatin, Crestor, Lipitor, etc?  I am and I stopped taking them, trying to make a link between the drug and some eye problems.  Well, my eye problems didn't improve but, low and behold, my hip pain did.  Within three days of stopping the Crestor, my hip was feeling much better.  I didn't make the connection until a friend said she had had problems with her IT bands, related to her statin use.  I've gone back on the Crestor and within two days the inflammation is back.  If you search statins and tendonitis, you'll find some articles about tendon damage up to and including rupture, due to statin use.  They are rare but they do occur.  I obviously don't know what your diagnosis is but, even though my doctor knows exactly what medications I'm taking, he never made the connection between my pain and the stain use.  I'm still not positive that Crestor is exacerbating my condition but, when I go off of it again in a few days and the pain goes away, again, the link will be hard to deny.

Just thought this info might be helpful to you...

Windie

[stano]

Windie,

You are the spark that I really need.  I take Simvastatin daily, but starting Friday I will not. I really appreciate the info on the connection of statins. At least it gives me some hope, I hope you are doing well, keep me posted, I will be out of town for a few days but should be back Monday.  Thank you very much,Take care ,

stano

[Windie1]

Please let me know Stano, if you notice any change.  Even though I went back on the Crestor, my hip still feels much better than it did before I stopped the med for one week.  Go figure...  ???

[stano]

Windie,
     It has been one week, I have not felt better in the hip but my body feels better. I think I will stay off it awhile longer.  How are you doing? Did you get a shot or find somebody to do it? Take care,

stano

[Windie1]

Hi Stano, 

I'm so sorry to hear that your hip's not any better.  Even though I'm back on my statin, my hip is still feeling better than before I went off it so, for now, I'm not going to pursue the shot.  Besides the fact, I couldn't find anyone here in Austin that had experience with administering it.  As for the statins, based on what I've found on the internet, it seems that they destroy the CoQ10 enzyme in the cells that provides the energy muscle and tendon cells need to rebuild, causing the damage to the same (by the way, CoQ10 is available in the pharmacy).  What really bothers me is that, even though my doctors always ask what medicines I'm taking and I'm complaining about all of this hip pain, they never connected the statin use with the hip pain. Go figure.  Anyway, take care of yourself - I am so hoping things will get better for you.  Please keep in touch.

Windie

[stano]

Windie,
How are you doing?  Just got off the phone with the Steadman Clinic in Vail, Co.  I am going to get a PRP injection on the ninth of November, I believe it is my last shot at fixing my Abductor tendon. This is what Dr Gross said would possibly work if my treatment with him did not.  At least it is going to be over, I do not feel good about spending the family fortune chasing this down, but if it does not work I think  I am ready to say it was a good fight, lets move on with what I can do and deal with the pain as it comes.  I hope you are doing well, take care.

stano

[Windie1]

Hi Stano.  I sure hope the PRP injection works.  Please keep us up to date as I'm sure there are a lot of us out here, not just me, hoping you finally find some relief.  As for me, while I was feeling better after going off of my statin, the pain has been gradually coming back.  I'm back to where if I walk without my cane, both of my hips and my back hurt, so I contacted Dr. Gross' office again.  I never was able to find anyone locally to give me the injection into my groin that Dr. Gross wnted me to get.  Now I think I will just schedule an office visit with him to see what he says - maybe he can give me a positive course of action as I am all out of ideas. 

Take care and best of luck in Vail!

Windie

[Gav]

I went for an ultrasound scan the other week as part of my ongoing ASR monitoring.

The radiologist said there was evidence of bursitis inside my groin. I have had some pain in there since my op.

I am awaiting diagnosis from my surgeon, to see what needs to be done.

I'll let you know how I get on.

[hernanu]

Sounds good, Gav - hope it turns out well.

[stano]

Windie,

How are you doing? Got back from Vale a few days ago. Quite an amazing process for the PRP injection. Per PRP history pain increases for the first couple weeks and then subsides. I am not to the subside point yet. Dr. Karli said it could take four to six weeks to see the benefits.
This is the end of the book, I turned the last page and I'm good to go either way. Will start a light exercise program around week three and hopefully I can increase my strength. Hope all is well with you and I hope you have a great Thanksgiving.
Take care,

Stano