Dysplasia and resurfacing

[stacky]

Hi Sal

Thanks for your support.  really great to have people to connect with going through similar.

I hope you can get your hip sorted soon! Sorry to hear things aren't going too well for you still.  Hope they agree to sort you right hip, I always find one side gets effected once it is taking the strain from the other so hopefully it is just your right that needs sorting to get you back on your feet.

The pain started for me about 4 months post surgery.  I had been doing really well up until then.  I had my left HR 2 years ago this summer and my right is just a year old.  The operations I had as a child were far worse surgeries and i always then had to have the metal work removed after, but I do find it harder to deal with surgeries now I'm older, it's quite strange how you can deal with things better as a child/teenager.

Great to talk with you, thanks again for replying.  Look after yourself and hope your appointment in July goes well.  I'll keep an eye on here for an update.

Stacy

[rubyred]

Hi and welcome, Stacy.

You'll find tons of support here and loads of helpful advice.

I was born with dsyplasia in both hips (as I only just discovered through my chiropractor!) but was not diagnosed until I was 29, 3 years ago.

I'm looking into options, but my age is going against me.

[Programmer]

That is great to hear Programer!  Was Dr. Gross the first doctor you went to or did you get many opinions?  At this point I think I would feel most comfortable with Dr. Gross but South Carolina seems along way to go from California.
I am glad that your surgery went well!
Martha

Dr. Gross was about the 4th or 5th doctor I consulted.  I live in Texas and was happy to pay the "out of network" difference to go to Dr. Gross.

[einreb]

That is great to hear Programer!  Was Dr. Gross the first doctor you went to or did you get many opinions?  At this point I think I would feel most comfortable with Dr. Gross but South Carolina seems along way to go from California.

FWIW.... I ended up with the 'tri spike' component that is usually used for displasia.  my hip was so screwed up that it wore the socket to a bad shape.

initially, I was freaked out about having something in me that I hadn't researched. however, dr gross has had ZERO acetabular loosenings with that device.  it has outstanding results in other surgeons hands too.

as for your flight... I flew from Chicago 3 days after the surgery.  a few pills, some very kind flight attendants, and a very helpful wife and the flight was no big deal.  A few hours extra effort for being in the hands of the right surgeon was time well spent.

good luck in your decision,

-Bernie

[Spanielsal]

I just thought I'd update the dysplasia thread, for anyone with similar issues coming later. 

I had severe pain, but, x-rays and MRI did not show significant changes. There was some OA visible but preserved joint space and similarly on the MRI the cartilage presented as still there. As a dysplasia sufferer, I only used a small portion of my hip joint, I was edge loading because my femoral head was only 2/3 inside my acetabulum.  And my dysplasia is mild.  I found myself walking with my leg in funny positions to try and avoid the pain, i could climb stairs in a flexed position but not standing straight.  two surgeons did not think i was "bad" enough for surgery. i eventually went back to my old surgeon who i had to travel to see.  He would have preferred to scope me first but id had enough and he agreed to replace the joint.  It was all visible when they opened me up, the member of the team that I spoke with after being signed off at my 6-9 week check told me that hyper mobility goes hand in hand with dysplasia and disguises symptoms on the X-ray and MRI. The cartilage is of awful quality but shows up as still there.  So, if you are suffering and things don't show up properly this may be the reason, take heart. There will be a surgeon who will listen to you and resolve your pain.  Keep trying.

[Anna]

Nice one Sally, thats a really good point. I think thats the problem most dysplasia sufferers have. We have the pain but it just doesnt seem to show up on the x rays and scans. I think Ruby was a perfect example of that. Surgeons then just wont listen and wont help. Its good to know a possible reason for this .... and it may be a point I will use in my fight in 2 weeks time!!  :)

Thanks

[rubyred]

Very good point, Sal. Just looking at my xray's, you can see something's not right, but it didn't match up to the severe pain I was in and it wasn't until I saw Mr T that any surgeon would listen to me.... even then it took xrays, MRI's AND a CT scan to assess the hip fully. Was all a bit of a drama.

[Toontowngal]

I have hip dysplasia as well. I am 43 yr old female. Had Birmingham in 2009. Medal is high in my blood and now waiting to have right hip done but not going forward with BHR. With the medal being high, it is too risky so I am having total hip replacement.

[Spanielsal]

Hi Toontowngal,

I'm very sorry to hear that you have both high metal ions and the other hip needing done too.  Are you considering revision surgery or are you going to wait and see?  Good luck with your thr, I've got a mini thr on my right which, touch wood, seems to be working out well. Keep us posted on how you get on.

Sal

[Toontowngal]

Im not doing any revisions if possible. No one seems to know what high levels actually mean if anything?? I do not like this surgery at all  lol  so hoping hips out last me!