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Author Topic: Vast improvement since first diagnosis  (Read 2675 times)

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morris44

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Vast improvement since first diagnosis
« on: November 25, 2009, 03:40:05 PM »
Has anyone else been diagnosed with arthritis and then had significant improvement?

I went to the doctor in March 09, terrible pain, couldn't sleep, etc.

Now it is November 09, and almost all my pain is gone. I still have mobility problems (bending, tying shoes).

I modified my activity, less running, but I still coach 3 teams (2 baseball 1 basketball).

The only "meds" i used were glucosimine/condroiten. I don't even need ibuprofen at all anymore.

My doctors just keep telling me I will get worse, but I haven't seen it.

I have bhr scheduled for 12/7, but will I get a whole lot better? I'm 41, so a good age candidate.

I don't want to have surgery for just a little improvement. If it was 6 months ago, I would have run to the hospital to get the procedure since the pain was so bad.

Any thoughts?
Jeff

Pat Walter

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Re: Vast improvement since first diagnosis
« Reply #1 on: November 25, 2009, 05:37:41 PM »
Hi Jeff

We have all had times when we felt much better and thought we did not need surgery.  Doing less activities often helps.

The one fact that is true - hips don't heal themselves.  If you have had x-rays and your hip is deteriorating, then your surgeon would suggest surgery.  If your x-ray was not that bad, your surgeon would not suggest surgery.  This is major surgery and is not be be taken lightly.

The one thing that has been found - pain is not the complete indicator of a hips condition. Some people have a lot of pain and yet not a lot of deterioration, while others can endure or don't have as much pain and have very deteriorated hips.  So your own pain is not the only indication of your hip problem.  You can wait too long and miss the window of opportunity to have a hip resurfacing.

So I would consider what your surgeon has suggested.  If would have been better to post this a bit earlier - then you could have gotten a second and third opinon.  Many of the top surgeons will give you free email consultations so you can get another opinion.  It is a bit late at this point.

If you are not comfortable with having surgery, cancel it and do some more research.  If you are like some of the others, when you cancel - the pain will get worse.  Typical.

Who is you surgeon?  Where do you live?
Pat
Webmaster/Owner of Surface Hippy
3/15/06 LBHR De Smet

Ed in PA

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Re: Vast improvement since first diagnosis
« Reply #2 on: November 25, 2009, 05:48:56 PM »
Jeff,

Go with your gut instincts and let the pain and your Doc be your guides!  

I had a RBHR done after initial X-Rays showed what they called only "moderate" osteoarthritis - but it was killing me!  I had done everything possible (with the exception of steroid injections) for this right hip prior to the surgery but nothing really helped.  

After the surgery my left (unoperated) hip started giving me trouble - groin pain, but not as bad as the right hip had been.  X-Rays on this hip were "unremarkable". I picked up a book called "The Arthritis Cure" by a Doctor Theodosakis.  I've been taking his brand of Glucosamine/Chondroitin, Omega 3 fish oil, and Vitamin D3 - all washed down with an "Elations" liquid G/C every day.  In short, the symptoms in my left hip have disappeared.  I am now 15 months post-op on the right hip and approx. 5 months into taking over-the-counter meds for the left.  I just completed a Rim-River-Rim hike at the Grand Canyon that was ~17 miles long and had ~9,000 feet in elevation change - neither hip gave me any trouble.  Personally, I'm going to go as long as possible before doing the other hip.  

How are your X-Rays?  Do they show a lot of osteophytes?    

  

dw

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Re: Vast improvement since first diagnosis
« Reply #3 on: November 25, 2009, 05:52:13 PM »
Has anyone else been diagnosed with arthritis and then had significant improvement?
I went to the doctor in March 09, terrible pain, couldn't sleep, etc.
Now it is November 09, and almost all my pain is gone. I still have mobility problems (bending, tying shoes).
I modified my activity, less running, but I still coach 3 teams (2 baseball 1 basketball).
The only "meds" i used were glucosimine/condroiten. I don't even need ibuprofen at all anymore.
Any thoughts?
Jeff
Yes, I went through the same thing, I think it's mostly mental. Surgury is a big deal, and one of the ways of putting it off is thinking you feel better. Of course, laying off normal activities also helps alleviate pain and inflamation, but remember, you'll have to keep doing less and less to feel the same way.

morris44

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Re: Vast improvement since first diagnosis
« Reply #4 on: November 25, 2009, 06:02:01 PM »
Ed, my xrays are somewhat unusual. the majority of the hip is fine. only the outside edges are showing wear. that is where the rubbing is occurring.

morris44

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Re: Vast improvement since first diagnosis
« Reply #5 on: November 25, 2009, 06:04:07 PM »
Pat, been to 3 doctors.

Chicago.

Using Delle Valle at Rush Hostpital.

Thanks

Foosball

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Re: Vast improvement since first diagnosis
« Reply #6 on: November 25, 2009, 10:20:48 PM »
I had arthritis pain in my hip starting about 8 years ago.  After a few years I thought I would try taking glucosamine and chondroitin.  After a few weeks I noticed a significant improvement.  I was able to live fairly comfortably for the next 4 years.  

However, I had friends ask me why I was limping.  Also I no longer could do things like jogging.  But I was happy that the pain was livable.  This past year my pain got much worse.  The supplements did what they could but they were no longer doing the trick.  

I saw a specialist in May09 who recommended the bhr.  At the same time I received a cortisone shot.  Well, I felt better after the shot.  I figured I could put off the surgery for a couple more years.  The problem is when the shot wore off, I was in the more pain than I had ever experienced.  

I decided to have the surgery at that point.  I'm now 5 weeks post surgery and really happy that I will be able to get back to physical activities once I fully recover.  

You'll know when the time is right.
« Last Edit: December 07, 2009, 05:33:44 AM by Foosball »
RBHR - Oct 21st, 2009 - Dr. Salypongse

Lopsided

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Re: Vast improvement since first diagnosis
« Reply #7 on: November 26, 2009, 11:51:39 AM »
Has anyone else been diagnosed with arthritis and then had significant improvement?

Hi Jeff,

Most of the time since I was diagnosed, I have no pain, just lack of movement. I get bouts of inflammation that can last a couple of days or a few weeks, where I find it hard to get up, sit down, roll over in bed or get dressed. Then all of a sudden it is mostly gone, and I feel like I will not need the operation for years.

It is difficult to know if I should wait for as long as possible for the operation, or as well as my cartilage, is my bone deteriorating too?

I don't want to have surgery for just a little improvement. If it was 6 months ago, I would have run to the hospital to get the procedure since the pain was so bad.
Any thoughts?

!!

Dan



Proud To Be Dr. De Smet's First Uncemented Conserve Plus, Left, August 2010

Josephine18

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Re: Vast improvement since first diagnosis
« Reply #8 on: November 26, 2009, 01:21:55 PM »
Hi Dan,

Arthritis associated with marked degeneration in the articular cartilage can result in bone deterioration including subchondral sclerosis, osteophyte formation, and the development of cysts. The quality of bone stock is one of the primary considerations for determining candidacy for a resurfacing.   

Lisa M.

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Re: Vast improvement since first diagnosis
« Reply #9 on: November 26, 2009, 04:26:12 PM »
Hi Jeff,

I have experienced the same thing that you are talking about. I would go a month or so with no pain and then I would limp around and hardly walk for a week or two. Then I would be fine for two months and then again I would be in pain for a week or so. For this reason I put off doing anything about it for a very long time. Now that I have had the surgery and that is all gone I wish that I had done it sooner. It had just become a negative thing about me. There were times that I could not ride bikes with my son or walk the dog. It was a waste of time waiting. Even when I had no pain my range of motion was deteriorating.  It will get worse. Even the night before my surgery I was thinking that it really was not that bad. Now that I have had the surgery I realize how bad it really was. I am so happy now and I am glad I did not wait another day to have this behind me. Having said that, we are all different and if you feel fine and are not comfortable with the decision to do the surgery now then don't do it. Listen to your own instincts and those of your Doctor. I just thought I would share my experience with you.
-Lisa
-Lisa M.
LBHR 9/22/2009-Dr.Pritchett-Seattle

morris44

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Re: Vast improvement since first diagnosis
« Reply #10 on: November 30, 2009, 03:37:12 PM »
dan, i know what you mean.

I have decided to go through with it a week from today.

And thanks to everyone who commented, it made my decision easier.

I have a goal to play baseball with my 7 year-old when he is 18 (and old enough for our adult league) and i'll be 52. I know this is my best chance to reach that goal and will be focusing on that to drive me.

i will probably end up needing both done, and i want to start as early as possible so my recovery is better and so i can enjoy the next 20 years. besides, i want to play left field, not first base.

Barbara

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Re: Vast improvement since first diagnosis
« Reply #11 on: November 30, 2009, 10:12:13 PM »
It is typical of Athritis to have periods of inflammation and periods when it is not painful. It is thought that more damage occurs with each inflammatory episode. I also thought Glucosamine and chondroitin helped but at the end of the day the disease process will run its course.
Barbara
Barbara
RBHR 10/13/2008. LBHR 12/08/2008. LBHR revision 1/18/2010, LTHR 9/23 2011, RTHR 12/16 2011............
Dr Pritchet, Seattle

Josephine18

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Re: Vast improvement since first diagnosis
« Reply #12 on: December 01, 2009, 12:39:04 AM »
Jeff,

Best wishes for a very successful surgery and recovery! Let us know how everything went for you when you get a chance.

Lopsided

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Re: Vast improvement since first diagnosis
« Reply #13 on: December 01, 2009, 11:03:01 AM »
i know what you mean.I have decided to go through with it a week from today.

Jeff, I hope you keep posting about your operation and how you feel afterward. I have difficulty playing with my young children too. So your situation means a lot to me, as I am probably about a year behind you.

I hope you recover well.

Dan




Proud To Be Dr. De Smet's First Uncemented Conserve Plus, Left, August 2010

morris44

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Re: Vast improvement since first diagnosis
« Reply #14 on: December 10, 2009, 02:14:00 PM »
Had my surgery Monday 12/7 (pearl harbor day!) at 7:15 am.

I kept thinking i would not go through with it, even up til they have me the epidural.

I couldn't sleep for 3 days prior to the surgery.

But I made it through.

the procedure went very well, don't remember anything at all. care at the hospital was great. it is amazing to see how well trained and professional everyone is

Had pt about 5 hours after surgery. got out of bed, walk a few steps forward, right, left and back, using crutches.

got my self back in bed.

went home the second day, home by noon.

doing pt every day in home, with therapist. it hurts,  but i would say it hurts no more than some bad sprains I've had.

my wife took the week off work to help me. this is the most important thing. you have to have a full time helper. i keep forgetting my "reacher", and you cannot reach your pants, shoes etc without it. get a helper.

today is thursday, and i can walk unassisted. i am an overly cautious person, so I only walk a few steps that way.

if i stay on top of the painkillers (norco) i have nearly no pain. sleeping is the hardest as you go 8 hrs without a dose.

overall the experience so far is 100 times better than i thought it would be. my nurses(even the one who comes to the house)  keep asking me my level of pain. i don't think i have gotten over a 3 out of 10.  i dislocated my shoulder once - that is a 10.

i am 41, and in decent shape, not great, but very normal-average.

i will try to post over the next few weeks.
Jeff

 

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