Mon Oct 16, 2006 5:02 pm
My daughter is 14 and has been diagnosed with severe protrusioacetabuli in both hips. In December 05 she was diagnosed and did nothave any symptoms. By May she was limping and this summer she wentfrom walking with a cane to being in a wheelchair. She now can walkonly around the house with the aid of forearm crutches. We areawaiting surgery dates for either BHR or THR. Have any of the peoplewith this condition experienced such rapid deterioration? Her case isvery complicated by the fact that she is so young.
My daughter’s condition is primary.We had no idea of any problem as she has been a very athletic child.In December she was playing in a volleyball game and her hip hurt soon a whim I took her for an x-ray which showed this condition. Shenever had any more symptoms until May. We had to find a newspecialist as the first pediatric ortho said nothing could be donefor her until she finished growing. However her deterioration hasbeen so rapid that our new doctor (who is experienced in Birminghamhip resurfacing) says that it can not wait. We saw him in midSeptember and he investigated doing a periacetabular osteotomy andfemoral rotation but her cartilage is too far gone. We meet withhim and some other specialists this week to decide the type ofprocedure to be done. There is concern with the BHR with chromiumand cobalt ions due to her young age. I am happy to hear you havehad such good results with range of motion and I hope that we canhave surgery which gives my daughter good results. I am also happyto find some others with this condition. I felt like we must be theonly ones in the world with this.
Just a quick note to say that our 14 year old daughter was givena lf BHR yesterday by Dr. James Powell in Calgary, Alberta. She hassevere Protrusio Acetabuli and it is bilateral. Our Dr. plans to dothe right hip in about 2 weeks or so as soon as she is recovered andfeels up to it. She has non weight bearing restriction for 6-8 weeksas she was in a wheelchair prior to surgery for about 3 months and herbones are very soft. The Dr. is very concerned about fracturing asshe is also very tiny. We are thrilled that he was able to do aresurfacing and feel very thankful to have such a skilled surgeon asher case is a very difficult one. She is very tired today but happythat the journey to the other side has begun. Thank you to everyonefor your support.
Hi! Our daughter had her second hip resurfaced today in Calgary,Alberta by Dr. Jim Powell. Her first hip was done two weeks ago andis progressing nicely. We are thrilled and thankful to have such askilled surgeon in Calgary. Hers is a difficult case and his care hasbeen exemplary. Our daughter has severe protrusio acetabuli and hasbeen in a wheelchair since August so her bones are very soft. Shewill be non weight bearing for 6 weeks to prevent femoral neckfracture and facilitate healing. She has a long road to recoveryahead of her but we are very positive that she will have a goodoutcome. If we can ever be of any help to other people,particularily those who are young or have protrusio please contactus. We will post again with news of our daughter’s recovery.
Sincerely Lynn Rt and Lt BHR Jim Powell- Calgary,Alberta,Canada
Fri Jan 19, 2007 3:16 pm
We just returned from our daughter’s checkup. She is now 8 weekspost op on the left hip and 6 weeks on the right hip. After surgeryshe was totally non weight bearing so she has been in a wheelchair.For those of you new to our case my daughter has severe protrusioacetabuli and was in a wheelchair for three months prior to hersurgery. She had severe contractures and no range of motion and isconsidered a very difficult case. Her x-rays look fine and her bonegrafts have healed nicely! She is now able to begin walking with theuse of forearm crutches. Her range of motion is improving andhopefully it will continue to as she gains strength. She will continuewith physiotherapy both in water and in the hospital. Best of all sheis pain free and moving forward slowly but steadily. ..and our Doctorhas been wonderful. If we can help anyone-especially young peopleplease contact us.Lf BHR and Rt BHR – Dr. Jim Powell, Calgary, AB
Kaibree is now about 4 1/2 months post op and she is progressing wonderfully. She can now walk without crutches or cane and to see her walking you would never know she has had bilateral hip resurfacing. When we watch her today it is hard to believe that only three months ago she was still in a wheelchair. Kaibree’s progress has been steady. She is becoming more like the active teenager she was before this condition developed. We still attend physiotherapy as she has had some discomfort caused by her iliopsoas tendon so the therapist is targeting that area as well as continuing to work on her external rotation. She swims three times a week with a swimming club and she is starting to take part in normal phys-ed classes at school. She is able to walk a good distance (2-3 kilometers) and is riding her bike again! This resurfacing procedure and the care of a great doctor has give our daughter a chance to resume the active life she knew. We hope that her progress will continue! Success in her case will certainly help other young people receive treatment through resurfacing.